October, November and even December

on October 1st we calibrated Madisons eighth month birthday by testing positive for Rhino virus again.  Not the way I wanted to spend October and November and December....... needless to say we were more then a but frustrated by all that was going on.

 In the middle of October Madisons Casts finally came off and she was able to move her legs, unfortunately they were super sensitive and she required a lot of sedation to keep her heart rate below 200.  She then had to wear Braces all day and night as for the next three months.

she Hated the braces and we had to fight for two weeks to get her to wear them without freaking out.  As you can see in these pictures Madison was still very puffy from all the steroids despite being on 18 calorie formula (or a baby diet as we called it) she was still gaining at a rapid pass and the doctors were very concerned.  they did testing to be sure there was no problem with her thyroid or any genetic disorder that could lead to rapid weight gain.  Everything came back normal, so we waited to see if the baby diet would work.

meanwhile we got ready to celebrate our first Halloween

Maddie was the cutest pumpkin there ever was, she was not exactly thrilled with wearing the costume but it was super cute!!!!  












In November we continued our fight with Rhino virus, for some unknown reason Madison seemed to have picked Rhino as her favorite and would become sick with nothing else.  I love this picture she is snuggling a bbg (Baby bugger getter) so we could not suck out her nose well she was asleep.

 On November 10th Madison became very sick again, this time she had a bacterial pneumonia as well as the Rhino Virus. It was hard to watch her feeling so yucky after having a few months were we got to watch her moving forward.  The decision was made to put her back on Nitric Oxide to see if we could get her oxygen back down again.  It was hard to feel like we were again moving back to were we had been in June.  thankfully Madison recovered from this pneumonia and started to get better.  She had a Cardiac Cath at the end of November were the decision was made that her ASD needed to be closed.  We could not do this procedure until she was Rhino negative for two weeks so here is were we started the waiting game.....