Grandma Lynette came by and Madison immediately insisted on being rocked to sleep as only Grandma Lynette could do. |
Miss Sarah came to visit and Maddie was so happy she was dancing |
Fortunately for us some of our NICU friends found our new house and came for a visit. We love having them and Madison loves showing off her new surroundings. She seemed to know who they were and expected them to play the same role in her life it was great!
Miss Barb got huge smiles and Maddie wanted to play when she came to say Hi |
To be honest that first few weeks seems like a blur Tony and I had to learn how to live in the same house again, I had to learn how to care for myself and Madison at the same time. One thing became clear pretty quickly we needed more space. When we had talked about bringing Madison home we had always assumed the two bedrooms at my moms would be enough space and it was, we made it work and we will be forever grateful for the wonderful home my mother provided for us. I don't think I will ever be able to express to my mom how much she helped us through those 15 months in the hospital. However, Tony and I both felt it was time for us to be a family on our own. Perhaps there is a part of me who was done sharing my baby all the time but we started to look for a place of our own. We put our faith in God, I knew that if he wanted us to move he would make it possible. And he did very quickly in fact.
In July we found an apartment that not only met all of our needs and was in our price range but it was only a short walk to my moms house so Maddie could still have plenty of Grammie time (which is good because Madison has become a bit attached to her Grammie).
On July 22nd we moved into our new place with the help of my awesome sister and little brother. We are loving our knew home and we are loving being home. on August 30th I graduated with my Bachelors in Psychology (Which I think is awesome considering the last two years of my life have been complete craziness). And now I get to start grad school next week, Yes I am Crazy and I would not have it any other way.
Madison has grown and gained all kinds of new skills. She has also broadened her TV selections to include The Lorax, Herculese, Mulan, Tinker Bell and of course Hells kitchen and Mythbusters. She can sit by herself and is working on crawling, she is close to going from laying to sitting on her own and she roles all over the living room floor. She has experimented with a few different tastes and liked a couple but only the first time I am convinced she is just messing with me. We have also got to experience all kinds of knew fun things, including a birthday party, meeting her cousins and a trip to dinosaur park as well as her very first Peach Days Parade. We have made new friends stayed in contact with old friends and grown closer and closer. We love our New nurses our pediatrician is AWESOME!! Dr Day is of course as awesome as ever. Everyday is still a blessing and trial in itself, every breath is another miracle. But Every step of the way this little 24 week, pulmonary hypertension miracle just keeps beating all the odds and I am so glad she picked me to be part of her journey.
Finally for your viewing pleasure an assortment of Pictures from Maddies First few months at home.
Grammie Gave her a giant Pretzel she thought it was ok until part came off in her mouth. |
Snuggles with Momma are a necessary part of nap time she will no longer take a nap in her bed I continue to suffer through and endure having to hold her all the time :) |
I was trying to drink out of this cup and she kept doing this. She likes pink |
Beef Jerky was also a fun thing until it broke off in her mouth then she was MAD!! |
HI |
Wearing Princess PJ's is the best |
In June Madison decided we needed to have a sleepover at Primary. We took her to the local hospital and she was transferred to Primary by ambulance because her o2 needs were so high |
Tony was so excited to ride in the ambulance they ran the lights and siren just for him. |
Only good thing about going to the hospital was Brianna got to come meet Maddie. Madison did not feel up to socializing. |
When we went in for trach vent clinic Benjamin came up to meet Maddie also. She was not sure how to handle these small people. |
I am not sure which one of them is more unsure |
Aunt Gabie Made this awesome Raggedy Ann that is so Maddie. Bright pink and flashy clashing fabric Madison laughed and then tried to eat it hair |
Just being super cute!! |
"I am so silly" |
Miss Tiffany came for a visit with her beautiful daughter and they read stories |
This is Maddies favorite blanket. Don't fear she still loves the zebra print one but this one is lighter. |
I just love how much she loves it |
"Blanket" |
Maddies First Selfiee |
Ok this picture is funny because this is what she did all through the firework show Uncle Stephen put on. She was unimpressed |
Silly face |
Princess Maddie all dressed up for Brianna's Fourth birthday Party. |
We really struggle with bath time but Maddie feels better if I let her chew on the towel after. |
we finally got to meet Lilly and Danial. Maddie Loved it they laid out all her light up toys and had them all running all Maddie had to do was sit back on Aunt Betsys lap and watch |
First time in the new apartment, she actually kind of freaked out to have so much space and we had to put a blanket under her so she felt confined |
playing with Aunt Betsy and Lilly |
All ready for church. She was happy till the music started then she was terrified and we had to leave. |
At Mommys Dr appointment. Apparently it was so funny that Momma had to get poked for a change. |
Surprising Grammie with a visit on her birthday. |
Waiting for a sedated Echo in the OR. Maddie thought Going without food for 12 hours was absolutely not cool. |
Momma and Daddy Put her on the floor so they could have dinner she was displeased and so she hid under her blanket then she fell asleep. |
Playing in the dirt at the park. Don't worry I used Hand sanitizer after this. |
Just so Happy to be awake |
showing off her ability to put her own beads on |
More Cute Smiles |
At the Peach days Parade it got a bit chilly |
A cool Float |
She was not so excited about the fire trucks but she liked watching the other kids and being outside. |